I have been ill for awhile. Not so much hiding but have been unsocial. It is not hopefully where it has been offensive. It is not anyone's fault. I will hopefully be my normal self again soon. Hopefully after this I will have my life back and be able to get back to my passions of the things I love and the journey that I should be on. It definitely makes you realize what is important in your life and the goals that are within reach. I still want to get into the projects that I had started. Unfortunately I simply do not have the energy to deal with these goals.
WE ARE CATTLE in the doctors office if you think about it. The doctors play guessing games and I just don't understand why they will NOT have an open mind to the possibilities of something else wrong with him. I want my beautiful man back. It seems like his spirits are up most of the time these days which is frakken wonderful and it seems like he is more hopeful these days.
My health has been an interesting journey for the last year or so. For the few of you that I call to say hello you are somewhat aware of what has been my up and down curse. For the last several years we have been dealing with more of Greg's health. He is getting better; still has his bad days. Sheesh... been doing that for almost 9 years with him. My beautiful love may have heart issues. This may be the cause the whole time. I have been so ready to go after the doctors that have literally marked and scarred him for life, employment, and worst of all the extended time of not knowing what the hell is wrong with him. MORONS is what these people are.
For me in April things started going haywire. I ended up in the hospital after gaining 30 lbs in 3 days. I was swelling horribly and thought I was having an allergic reaction to hair dye or took my medication wrong. For the last year I have been going through a severe vitamin D deficiency. Along with that I have an iron deficiency (anemia) although it isn't life threatening. A doc did run some tests although there is NOT a test out there for Fybromyalgia. All the points that they describe as painful points I hit on. Kinda weird when a doc asks does your ass hurt ? LOL. Anyway, I do NOT suffer from any depression, so lets get that straight. You don't have to be depressed to be in pain. The pain goes all the way to the bones. During the winter is the worst because the pain is almost unbearable. When you have a vitamin d deficiency to go along with it you feel almost menopausal going through the hot and cold flashes. You get nausea, fatigue, etc etc. For the last year I have been on 50,000 IU of Vitamin D per week and my levels are still off. The primary doc is baffled. So I was referred to an Endocrinologist. They ran about 8 tubes of blood. Turns out my PTH (Parathyroid Hormone) is sky high. This indicates a tumor when this score comes back high. There is always a tumor. Along with this lovely test they test your calcium levels. In my blood the calcium is a little high not tremendously so this is conterdictory to the fact my waste (pee) level was 10x higher than the norm. This can indicate kidney stones... which I have yet to explore.
Symptoms may include some, most, or all of these: weakness, fatigue, aches, loss of appetite, nausea, vomiting, constipation, abdominal pain, excessive thirst, excessive urination, bone pain, muscle aches, high blood pressure, confusion, emotional behavior, impaired thinking, impaired memory, delirium, stupor, coma, thinning bones, risk of fractures, hypercalcemia (elevated blood calcium levels). Mine are pretty much the weakness, fatigue, aches, loss of appetite, nausea, abdominal pain, excessive thirst, bone pain, muscle aches, high blood pressure (Which mine has started this new symptoms;although I think it is more from the pain), confusion, emotional behavior(bitchiness), impaired thinking, impaired memory, delirium, stupor, coma, thinning bones, risk of fractures, hypercalcemia (elevated blood calcium levels - mine is up and down).
Sooo last week I go to the surgeon after having the initial spect scan done to see this tumor in my radiated state. Picture an outline of a figure on a tv in the "snow" form. The radiated spots show up on the scan.... this will include your heart, lymph nodes...etc. If the Parathyroid shows up there is a problem. So I am expecting to go to this appointment last week all hip to the fact that this will cure me if this dam thing is out of my body. This invader of my health. The surgeon says welllll this spect scan didn't show up clear enough for him to say well YES lets go ahead and schedule surgery. He wants more tests. So I gave more blood and had an ultrasound. Blood was easy. So the hubs and I go outside after the blood, have a smoke and I just was heartbroken. My heart sank to the ground and I broke down. I was fed up. Tears flowed and I wanted to check out at that second. The hubs kept my spirits up and I sucked it up and was ready for my ultrasound.
What should have taken 15-30 minutes turned into almost an hour and a half. Two techs and a doctor pried at my neck for this amount of time and honestly I just wanted to be done with. They saw something and couldn't determine if it was my lymph node or my parathyroid at this size. Nevertheless it was interesting to see as my head was tilted towards the screen and I asked many questions like OMG what is that thing. LOL.
The function of the parathyroid delivers calcium to the body. If the body has enough calcium it turns off. It does this on and off through the day so the body is always supposed to have sufficient amounts of calcium for the body. Now if the Parathyroid decides to be psycho and create to much calcium it is known as Hyperparathyroidism.
So below I have included some lovely info about this disease if you are interested in knowing more about it. I frakken LOVE wrongdiagnosis.com for the valuable info... it is like a medical journal. Other sites like webmd don't get down to the fact that this disease can be misdiagnosed again and again. IF you are not feeling well and are young you MUST get checked out. This disease as well as any vitamin or mineral deficiency can kill you.
For me I have not only the calcium to deal with at this point but also Magnesium, Vitamin D, and Iron deficiencies. I hate hate hate having to take meds all the time for the deficiencies but also for pain. NOT fun.
Medical Info:
Hyperparathyroidism refers to an excess secretion of hormones by the parathyroid glands, and this alters calcium metabolism. ...more »
- Hyperparathyroidism: Increased secretion of parathyroid hormone from the parathyroid glands.
- Hyperparathyroidism: Abnormally increased activity of the parathyroid glands, which may be primary or secondary (HYPERPARATHYRODISM, SECONDARY). Primary hyperparathyroidism is associated with neoplasia or hyperplasia. The excess of parathyroid hormone leads to alteration in function of bone, renal tubules, and gastrointestinal mucosa. (Dorland, 27th ed)
Source - Diseases Database - Hyperparathyroidism: excessive secretion of parathyroid hormone resulting in abnormally high levels of calcium in the blood; can affect many systems of the body (especially causing bone resorption and osteoporosis).
Source - WordNet 2.1
For a diagnosis of Hyperparathyroidism, the following list of conditions have been mentioned in sources as possible alternative diagnoses to consider during the diagnostic process for Hyperparathyroidism:
- Familial hypocalciuric hypercalcemia
- Hypercalcemia of malignancy
- Multiple myeloma
- Familial hypocalciuric hypercalcaemia
- Vitamin D intoxication
- Sarcoidosis
- Hyperthyroidism
These are the Tests that MUST be done to determine the disease.
Hyperparathyroidism: Diagnostic Tests
The list of diagnostic tests mentioned in various sources as used in the diagnosis of Hyperparathyroidism includes:
- Serum calcium level - usually raised
- Parathyroid hormone blood level - usually raised
- Serum phosphate level - usually reduced
- Bone density measurement
- X-rays
- Kidney tests
- Abdominal radiographs
- 24-hour urine collection
Read more at http://www.wrongdiagnosis.com/h/hyperparathyroidism/tests.htm?ktrack=kcplink
Read more at http://www.wrongdiagnosis.com/h/hyperparathyroidism/misdiag.htm?ktrack=kcplink
Underlying conditions list:
The list of possible underlying conditions mentioned in various sources for Hyperparathyroidism includes:
- Parathyroid adenoma<<<< CONFIRMED with a Spec Scan.
- Parathyroid hyperplasia
- Parathyroid cancer
- Kidney failure
- Familial endocrine neoplasia type I
The list of complications that have been mentioned in various sources for Hyperparathyroidism includes:
- Kidney stones
- Kidney failure
- Fractures - caused by thinning bones as calcium leeches out of bones into the blood.
- Excess insulin production (hyperinsulinism)
- Hyperinsulinemia
- Insulin resistance
- IGT
- Pancreatitis
- Peptic ulcers
- Delirium
- Coma
Read more at http://www.wrongdiagnosis.com/h/hyperparathyroidism/complic.htm?ktrack=kcplink
Read more at http://www.wrongdiagnosis.com/h/hyperparathyroidism/underly.htm?ktrack=kcplink
Read more at http://www.wrongdiagnosis.com/h/hyperparathyroidism/basics.htm?ktrack=kcplink
So anyway that is what has been going on. I feel like I am totally out of the loop. I miss my friends and painting (I haven't painted in almost a year). My endocrinologist is awesome!!! I am just so happy she found this because it has been a frakken struggle to get it through my doctors heads that something was not going right. Life has turned literally upside down. The endocrinologist is hopeful that after this disease is cured (with surgery) that the Fibromyalgia will dissipate. The weight issue I think will start to get a clue after this thing is out of me and I can and WILL get back to how I feel gorgeous. can we say Yay? :)
Sorry this was so long. I know a lot of people feel like I have avoided them which has never been intentional. I must get through this. It is truly appreciated of all the well wishes. I Love you all.
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