Tuesday, October 14, 2014
Isn't it funny that sometimes we lose track of our own age and don't realize how old we really are until one of our kiddos has a birthday? My oldest turned 15 yesterday and my youngest is now 12 as of a few days before last night. Both of my boys are almost exactly to the day 3 years apart from one another. Have heard a lot recently that when boys argue constantly and make us crazy when they are young, they often end up being super close as adults. Strange regardless. As an only child, I had made a ton of friends and it was nice to have that vs the sibling deal because if we got tired of one another, you could just be on your way and go home. So at times I have to think of siblings as if we were sharing one shirt and stuck with one another vs. being an only child. That seems to work well.
My Husband has been ill again for almost 2 months now. It is so very frustrating to feel like we are going through a de ja vu situation. What is more frustrating is doctors and trying to fight for your spouse, their patient. Over the last several years we have become great at reading doctors and how they are going to end up being in the long run of the situation. Honestly, Dr's, We have no time for b.s. or incorrect answers and guessing games. It is pretty bad that you end up challenging the doctors more and more these days. We have had to research our own documents and look up answers to this, that and the other. It is highly frustrating simply due to the fact that these folks go to school for a LONG time to do the work they do and on top of that the residency that is also a must. What's frustrating is that they should know the answer to the questions we ask or have the will to actually do their jobs and quit having tunnel vision or just turning into a moron. We don't have time for that and neither does any patient, EVER!! .... dammit! lol.
My husbands cbc blood work comes back with elevations on a lot of the red blood cell groupings. the cardio and pulmonary both said oh that's nothing. I don't think so. We need a Hematologist as well as an Endocrinologist to look at the blood as well as the hormones that the body needs. I think personally it is Adrenal and possibly something dealing with the Thyroid gland. But we shall see.
Keep us in your thoughts folks xoxox OH and if you have ideas on what other tests we should run or any ideas in general, contact me! Until then, hugs and kisses.
Monday, February 14, 2011
Sunday, October 31, 2010
I have been ill for awhile. Not so much hiding but have been unsocial. It is not hopefully where it has been offensive. It is not anyone's fault. I will hopefully be my normal self again soon. Hopefully after this I will have my life back and be able to get back to my passions of the things I love and the journey that I should be on. It definitely makes you realize what is important in your life and the goals that are within reach. I still want to get into the projects that I had started. Unfortunately I simply do not have the energy to deal with these goals.
WE ARE CATTLE in the doctors office if you think about it. The doctors play guessing games and I just don't understand why they will NOT have an open mind to the possibilities of something else wrong with him. I want my beautiful man back. It seems like his spirits are up most of the time these days which is frakken wonderful and it seems like he is more hopeful these days.
My health has been an interesting journey for the last year or so. For the few of you that I call to say hello you are somewhat aware of what has been my up and down curse. For the last several years we have been dealing with more of Greg's health. He is getting better; still has his bad days. Sheesh... been doing that for almost 9 years with him. My beautiful love may have heart issues. This may be the cause the whole time. I have been so ready to go after the doctors that have literally marked and scarred him for life, employment, and worst of all the extended time of not knowing what the hell is wrong with him. MORONS is what these people are.
For me in April things started going haywire. I ended up in the hospital after gaining 30 lbs in 3 days. I was swelling horribly and thought I was having an allergic reaction to hair dye or took my medication wrong. For the last year I have been going through a severe vitamin D deficiency. Along with that I have an iron deficiency (anemia) although it isn't life threatening. A doc did run some tests although there is NOT a test out there for Fybromyalgia. All the points that they describe as painful points I hit on. Kinda weird when a doc asks does your ass hurt ? LOL. Anyway, I do NOT suffer from any depression, so lets get that straight. You don't have to be depressed to be in pain. The pain goes all the way to the bones. During the winter is the worst because the pain is almost unbearable. When you have a vitamin d deficiency to go along with it you feel almost menopausal going through the hot and cold flashes. You get nausea, fatigue, etc etc. For the last year I have been on 50,000 IU of Vitamin D per week and my levels are still off. The primary doc is baffled. So I was referred to an Endocrinologist. They ran about 8 tubes of blood. Turns out my PTH (Parathyroid Hormone) is sky high. This indicates a tumor when this score comes back high. There is always a tumor. Along with this lovely test they test your calcium levels. In my blood the calcium is a little high not tremendously so this is conterdictory to the fact my waste (pee) level was 10x higher than the norm. This can indicate kidney stones... which I have yet to explore.
Symptoms may include some, most, or all of these: weakness, fatigue, aches, loss of appetite, nausea, vomiting, constipation, abdominal pain, excessive thirst, excessive urination, bone pain, muscle aches, high blood pressure, confusion, emotional behavior, impaired thinking, impaired memory, delirium, stupor, coma, thinning bones, risk of fractures, hypercalcemia (elevated blood calcium levels). Mine are pretty much the weakness, fatigue, aches, loss of appetite, nausea, abdominal pain, excessive thirst, bone pain, muscle aches, high blood pressure (Which mine has started this new symptoms;although I think it is more from the pain), confusion, emotional behavior(bitchiness), impaired thinking, impaired memory, delirium, stupor, coma, thinning bones, risk of fractures, hypercalcemia (elevated blood calcium levels - mine is up and down).
Sooo last week I go to the surgeon after having the initial spect scan done to see this tumor in my radiated state. Picture an outline of a figure on a tv in the "snow" form. The radiated spots show up on the scan.... this will include your heart, lymph nodes...etc. If the Parathyroid shows up there is a problem. So I am expecting to go to this appointment last week all hip to the fact that this will cure me if this dam thing is out of my body. This invader of my health. The surgeon says welllll this spect scan didn't show up clear enough for him to say well YES lets go ahead and schedule surgery. He wants more tests. So I gave more blood and had an ultrasound. Blood was easy. So the hubs and I go outside after the blood, have a smoke and I just was heartbroken. My heart sank to the ground and I broke down. I was fed up. Tears flowed and I wanted to check out at that second. The hubs kept my spirits up and I sucked it up and was ready for my ultrasound.
What should have taken 15-30 minutes turned into almost an hour and a half. Two techs and a doctor pried at my neck for this amount of time and honestly I just wanted to be done with. They saw something and couldn't determine if it was my lymph node or my parathyroid at this size. Nevertheless it was interesting to see as my head was tilted towards the screen and I asked many questions like OMG what is that thing. LOL.
The function of the parathyroid delivers calcium to the body. If the body has enough calcium it turns off. It does this on and off through the day so the body is always supposed to have sufficient amounts of calcium for the body. Now if the Parathyroid decides to be psycho and create to much calcium it is known as Hyperparathyroidism.
So below I have included some lovely info about this disease if you are interested in knowing more about it. I frakken LOVE wrongdiagnosis.com for the valuable info... it is like a medical journal. Other sites like webmd don't get down to the fact that this disease can be misdiagnosed again and again. IF you are not feeling well and are young you MUST get checked out. This disease as well as any vitamin or mineral deficiency can kill you.
For me I have not only the calcium to deal with at this point but also Magnesium, Vitamin D, and Iron deficiencies. I hate hate hate having to take meds all the time for the deficiencies but also for pain. NOT fun.
- Hyperparathyroidism: Increased secretion of parathyroid hormone from the parathyroid glands.
- Hyperparathyroidism: Abnormally increased activity of the parathyroid glands, which may be primary or secondary (HYPERPARATHYRODISM, SECONDARY). Primary hyperparathyroidism is associated with neoplasia or hyperplasia. The excess of parathyroid hormone leads to alteration in function of bone, renal tubules, and gastrointestinal mucosa. (Dorland, 27th ed)
Source - Diseases Database
- Hyperparathyroidism: excessive secretion of parathyroid hormone resulting in abnormally high levels of calcium in the blood; can affect many systems of the body (especially causing bone resorption and osteoporosis).
Source - WordNet 2.1
For a diagnosis of Hyperparathyroidism, the following list of conditions have been mentioned in sources as possible alternative diagnoses to consider during the diagnostic process for Hyperparathyroidism:
- Familial hypocalciuric hypercalcemia
- Hypercalcemia of malignancy
- Multiple myeloma
- Familial hypocalciuric hypercalcaemia
- Vitamin D intoxication
These are the Tests that MUST be done to determine the disease.
Hyperparathyroidism: Diagnostic Tests
The list of diagnostic tests mentioned in various sources as used in the diagnosis of Hyperparathyroidism includes:
- Serum calcium level - usually raised
- Parathyroid hormone blood level - usually raised
- Serum phosphate level - usually reduced
- Bone density measurement
- Kidney tests
- Abdominal radiographs
- 24-hour urine collection
Underlying conditions list:
The list of possible underlying conditions mentioned in various sources for Hyperparathyroidism includes:
- Parathyroid adenoma<<<< CONFIRMED with a Spec Scan.
- Parathyroid hyperplasia
- Parathyroid cancer
- Kidney failure
- Familial endocrine neoplasia type I
The list of complications that have been mentioned in various sources for Hyperparathyroidism includes:
- Kidney stones
- Kidney failure
- Fractures - caused by thinning bones as calcium leeches out of bones into the blood.
- Excess insulin production (hyperinsulinism)
- Insulin resistance
- Peptic ulcers
So anyway that is what has been going on. I feel like I am totally out of the loop. I miss my friends and painting (I haven't painted in almost a year). My endocrinologist is awesome!!! I am just so happy she found this because it has been a frakken struggle to get it through my doctors heads that something was not going right. Life has turned literally upside down. The endocrinologist is hopeful that after this disease is cured (with surgery) that the Fibromyalgia will dissipate. The weight issue I think will start to get a clue after this thing is out of me and I can and WILL get back to how I feel gorgeous. can we say Yay? :)
Sorry this was so long. I know a lot of people feel like I have avoided them which has never been intentional. I must get through this. It is truly appreciated of all the well wishes. I Love you all.
Wednesday, June 16, 2010
When you step back for awhile to just watch life surrounding you, you tend to realize who your friends are and who really gives a crap and the others you realize how they can abuse you, your talents, etc. Well what I have come to realize is this.... they are big boys and girls and well shit they need to figure the world out for themselves and quit being co-dependent on everything.
Also I have had some pretty major health issues. I was in the hospital about 2 months ago and found out some major things happening to my body. Well.... my body doesn't like me. .... and honestly I don't like my body right now. Lots of fucked things happening that just simply do not make logical sense. My Grandmother had Multiple Sclerosis and I am showing symptoms (early onset) of the disease. I have yet to find out if it is what it is but for now I have a diagnosis of fibromayalgia. Personally I think this is a bullshit answer to be diagnosed with. For years I have had pain that was unexplainable. My energy is up and down and I fight everyday to stay cheerful and pretend like I can get through it. It is a fight. I hate not feeling well. For a long time I was active in everything, i used to go out dancing, would go on walks, take exercise classes. Started getting into Yoga and Pilates a bit and then all this started happening. My energy most of the time if you are talking on a scale of 1-100.... my level would be between a 20 some days whereas other days my level is maybe a 60 most other days.
When I went to the E.R. a couple of months ago - Literally I had gained 30 lbs in 4 days with unexplainable reasoning why. Seriously my fingers looked like sausages and they threatened to cut off my wedding rings if I didn't get them off immediately. Most days if I have been on my feet for a bit they look like Flintstone feet. Anyone that knows me knows I LOVE high heels. Well looky there... I cannot bear wearing them for very long as my feet will start screaming..... I fricken hate flats unless they are beautiful sandals. I purpously buy larger shoes so that when my feet turn into giganto that I can be somewhat comfy. It is just ridiculous. ... Also I am a shoe HOG so what it has come down to is very soon I will have to start going through all of my shoes and believe me I could fill up a closet just w/ shoes. Do you wear a 9--- 9 1/2? Let me know and I will let them go cheap. :)
Anyway all of you that read this I appreciate all of you and hope that you are all well. If it seems like I have ignored you in anyway I apologize. However there is no reason that one person had the audacity to try to embarrass me and e-mail over 3,000 people suggesting to them that I am some type of ass, when in fact you had not a clue to reasons beyond my own control of what was happening and at the time I didn't even know what was happening, but evidently it was bad enough to where I had to stay in the hospital for a number of days...... THUS not a response to your phone calls... texts, etc. (You know who you are). Also the fact that I have a family to take care of including my husbands illness for the last eight years which goes up and down as well. I mean shit... the man has almost died twice in the last 8 years. Imagine having to deal with that and trying to figure out that as well. Life is a roller coaster. There are just some things that are much more important than pleasing everyone. Honestly, family is always more important and when it comes down to it I choose family over any project, deadlines, etc. I could be rude about it but I do not hold the grudge and people who actually know me know better. Bygones.... I am willing to let it go, and I am not expecting any sort of apology... but simply to move on.
Anyway... moving on. The Lifeblood show has opened up. It is an amazing show with incredible artists. Although some of the work may be offensive to some it is actually quite interesting. To me the show represents Life and the power of women. We can have our monthly stuff going on but to me the creation of life and the miraculous things that happen during this process. It is truly amazing. Jennifer Weigel has done an amazing job putting this project together. The core group of artists involved are Lisa Becker, Danielle Correll, Annette Crymes, Marsh heck, Christine Ilewski, Aunia Kahn, Arlene Ligori, Barbara Merlotti, Janice Nesser, Pat Owoc, Roxanne Phillips, Evie Shucart, and the creator Jennifer Weigel. Each of these lovely ladies has incredible talent.
Currently the exhibit is at Florissant Valley Community College -- If you go to their library area there is a fantastic contemporary art gallery -- It will be up till the end of the month of June 2010 so catch it if you can.
Anywho I am pooped out ... off to sleepy time.
Love ya all!
Sunday, November 22, 2009
Thursday, November 12, 2009
So it has been a while. Been pretty busy with a ton of personal things happening. Found out I had some health issues that i needed to address so now I am getting back on track.
I realized I haven't been taking care of myself as much as I need to and have been overwhelmed with many things so my body has caught up with it and has given me warning signals to chill and take care of me.
Recently I resigned from the Gallery I have been with for 2 years, Soulard Art Market. It really is a great little place. If you have not checked it out you should, there is some great stuff in there! I left because I needed to move on and do more projects on my own. I haven't had time to rest in a long time with different projects it can become overwhelming.
We have struggled through some health issues and discovering new things and seeing what we can do to fix things.
Our chaos is always around us. we are still workin on the house as well as trying to organize our chaotic lives. The economy sucks for everyone. blah blah blah..
Recently I thought to myself hmm I definitely think that this economy is a good time to be an entrepreneur. There are a lot of opportunities if sought out in the right areas. With Art it truly is a luxury item for a lot of folks to purchase something like that as most work ranges from 10 bucks to several thousands.
I have thought for a long time that i would love to create something that is consumable and relatively cheap for people to buy while I can still be creative. So I have been developing a product line for beauty products that are all natural. I am truly excited about this opportunity and am currently seeking property -- like a small boutique to bring my products to the world. There are several lines of my products that i am currently brewing up. Also I am looking into other lines to bring to the boutique like natural make-up products. I will definitely keep you up to date on when that happens. I have found a few places that I would like to look at as I have a certain aesthetic that i am looking for in a boutique. Preferably a corner store with some great windows to display some of the products. Love the older buildings and architecture.
It has been nice to just do minor shows and get away from the craziness that is my life. My true reality is that i am always busy doing something for someone. so having some selfish time is good for everyone once in awhile.
So that is it for now folks :) Will hopefully update soon! xoxo